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Hadley is a shy but sweet teenager who loves her family, friends and especially her dog, Buddy. From the beginning, school hasn’t come easy to her. Her parents first noticed something was amiss in second grade when they’d try to do homework with her and she’d cry and beg not to do it. Her writing looked more like a toddler’s handwriting and she couldn’t seem to stay focused on the class material. Her parents were worried – they knew she was smart, yet she struggled in virtually every subject in school, especially reading and math. They were determined to get her the help she needed and began searching for answers. A full neurological evaluation yielded diagnoses of ADHD and Dyslexia.
In 7th grade, her parents made the difficult decision to pull her from the school she knew and send her to a private school that specialized in students with learning challenges. But after two years, they hadn’t seen much progress. Says her mother, Ali: “A lot of people told us that this school was going to change her life, but it hasn’t.” “At that point, we’d tried everything with very little improvement,” said Ali. “I had an epiphany that something had to be off in her brain that needs to be fixed at a base level. It felt as if her neurons weren’t firing, pathways were blocked. I couldn’t shake this belief that we had to find the root cause. Otherwise, we will just keep spinning our wheels, losing thousands of dollars in the process.” Not knowing what else do to, Ali turned to Google. “As I went down the Dr. Google rabbit hole, I learned about primitive reflex integration, something I’d never even heard of but sounded like it could be causing some of Hadley’s challenges. Eventually I came across A Chance To Grow.” She immediately emailed Kelly Pittman, Director of ACTG’s Neurotechnology services, and during their first discussion, she knew that she was on the right track. “Talking to Kelly that first time was so refreshing because she totally understood our plight, having dealt with this type of stuff both as a parent and professionally.” As she learned more about ACTG’s clinical services, Ali was shocked and disappointed that she’d never heard of the services that ACTG offers. “The holistic, natural, brain-based therapy made total sense to me. For the first time ever, I knew that we’d found a better path.” "For the first time ever, I knew that we’d found a better path.” First, Hadley began neurofeedback with Kelly to help her brain self-regulate more efficiently. “It’s very common for people to get stuck in a stress response on a daily basis,” says Kelly. “This can show up in a child’s behavior as “hypo” or “hyper,” either shut down or over-aroused. Neurofeedback addresses this, often improving social and emotional regulation along with academic skills.” Next up is Neuro Integrative therapy, an approach developed at ACTG that combines several interventions that collectively promote brain growth and social, physical and emotional development through purposeful movement. The goal is to establish efficient neurological connections between the brain and the systems of the body to improve higher-level functioning. Kelly also recommended that Hadley undergo functional auditory and vision screenings. These differ from the routine screenings where, when a child passes, it’s assumed that their hearing or vision is fine. But functional problems with eyes and ears that can seriously impede the ability to learn are not picked up by routine screenings. Says Ali, “I was floored to learn that vision played into learning as much as it does. We knew Hadley could read, but she still couldn’t comprehend. Now I know. Learning is 80% visual and if the eyes are misaligned or not tracking correctly, it can often be mistaken for ADHD and Dyslexia.” Hadley had a functional eye screening and sure enough, ACTG‘s testing found her eyes were a big part of her challenges. Due to her misaligned eyes, she’d skip words which heavily affected her comprehension. “As ACTG explained to me, she was having to work so hard just to stay aligned in reading words and lines, her brain wasn’t able to comprehend what she was reading. Hence, the enormous academic struggles. There is even speculation that Dyslexia might be a misdiagnosis all together.” Hadley was also diagnosed with an auditory processing disorder (APD), which affects the ability to understand speech. Someone with APD might be able to hear well, but the auditory input is not correctly interpreted by the brain.
Although happy that she finally has answers that make sense, she wonders why it took her so long to find ACTG. “Never once in all of these years did a doctor say anything about brain-based therapies,” Ali says, the doctors just recommended medication. “I don’t understand why the medical community couldn’t or wouldn’t tell me about these other therapies and methods.” Hadley is 13 now, and if Ali and her husband had known about ACTG and their brain-based approach years ago, it might have changed the trajectory of her life. "I hope anyone who is on their own neuro-diverse struggle finds ACTG. It’s the best-kept secret and I want everyone to know about it." Now Ali wants to make sure that people who have neuro-diverse family members are aware of it. “I hope anyone who is on their own neuro-diverse struggle finds ACTG. It’s the best-kept secret and I want everyone to know about it. They truly want to help Hadley reach her full potential and I’m confident we’re in the right spot now, but even more than confident, I am so, so grateful.”
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When he got to high school, “I did really great freshman year in classes, and then I found sophomore year to be a step up from freshman year. I began to have trouble meeting expectations. I was really struggling with honors classes that I was selected into. I had to drop from honors geometry and biology into the regular courses. Man, did that year suck! I also found that it was becoming harder to interact with other people socially, even at the lunch table, because I was so drained. You see the ones that are achieving, and then you look at yourself and you think, I’m doing the same exact thing, or working even harder. You feel a little less than, hopeless.” Getting tutoring at school and at home did little to help, nor did other evaluations. “I’d had eye tests and hearing tests before, but nothing had ever been caught, any physical exam came out fine. But things still weren’t working out well, and when it came time for the ACTs and SATs, we knew I needed more help. We found out about A Chance To Grow from a friend on the football team, his mother referred us to you. I was evaluated by Dr. Moroz [then ACTG’s developmental optometrist, now retired], who diagnosed me with convergence insufficiency exophoria, and she gave me eye exercises and visual therapy. Then they introduced me to Michelle [Koyama, Neuro Integrative Clinic Therapist], for therapy to help with the visual system even more.”
I could walk better, drive better, my hand/eye coordination and timing in things like playing tennis got better. I could do deadlifts smoothly with thrust when I was coming up, I could do squats and bench lifting better.“
His life got better in other ways too: “Sleeping dramatically improved, my mood improved, I was more optimistic.” Eventually, even Kevin’s fatigue began to evaporate. “I found work weeks to be really challenging, so I’d be working like 25-30 hour weeks and I’d be exhausted. Once I started visiting Michelle, it went from 30 to 100-hour weeks for 10 consecutive weeks and it was insane. I was able to become more in tune with what I was able to enjoy. I took on a lot of extracurricular activities. For example, last summer, I had five different things going on – a full time job with a residential real-estate content company, a part-time internship with an organic food company where I did digital marketing, three online classes to fulfill university requirements, various software/design classes for my own benefit, and rebranding/revamping an advertising club of which I was the president.”
Perhaps most important, Kevin feels like the work he has done with Michelle at ACTG has helped him reach his true potential. “I think the fact that I’m confident in starting a business right out of college, I think that says something. I mean, two years ago, I don’t think I’d have been at that level. My self-confidence has increased, my ability to collaborate, to be able to take a step back. Now I’m in tune. Before, I was just drained, but now, it produces energy. How crazy is that?” Oliver is a happy, smart and creative eight-year-old with endless amounts of energy. He and his mom, Annie, first came to A Chance To Grow 18 months ago to address a myriad of physical and emotional development concerns. Early in Oliver’s life, Annie observed some unusual and worrisome behaviors. “From the time he could walk, he was falling down or crashing into things,” she said, “He’d walk on his toes and I didn’t know why.”
“He had a great experience in preschool,” said Annie. “He was performing well in a school environment, he made friends and his teachers didn’t raise any serious concerns about his behavior or speech delays.” Despite this, Annie and her husband were still concerned with his communication issues and began seeking help.
They decided to have him tested by a Speech-Language Pathologist (SLP) prior to beginning kindergarten to see if he could qualify for special education services through the school district. The SLP who conducted the test didn’t hear what Annie heard and recommended that he not receive speech therapy. It was the first of countless obstacles in the family’s search to get help for Oliver. A second test, with a different SLP, found that he qualified for an IEP, and at the age of five, Oliver began weekly speech therapy sessions. “Kindergarten was OK for Oliver. His teacher knew how to head off his meltdowns, and he started physical therapy to help address his balance issues,” Annie recalled, “But there were red flags. I saw attention and impulsivity problems, no eye contact, and perseveration issues (the repetition of a particular response).” At the end-of-the-year IEP meeting, she fully expected the school’s administration to recommend Oliver be evaluated by a doctor. To her surprise, the administration unanimously confirmed he was ready for first grade. Annie was thrilled, but intuitively, she knew something was still off. Annie was a teacher at the private school Oliver attended. “He was starting first grade and I had my dream job and things were looking OK,” she said. “But that’s when the storm hit. The demands of first grade were beyond what Oliver was ready to take on. Our school didn’t have the resources to provide support for Oliver or for his teacher. Because of his frequent meltdowns and he’d often spend his days in the principal’s office.” Meanwhile, Oliver’s physical therapy progress ground to a halt. His therapists would have him do activities that were not developmentally appropriate, like throwing and catching a ball, and Oliver simply stopped participating because he couldn’t do it. “His first grade teacher commented that Oliver wasn’t comfortable in his body,” said Annie. “She was right. Something was wrong, but we just didn’t know what it was.” During the turmoil, a family friend named Jo Gascoigne suggested Annie look into an organization called A Chance To Grow, where Jo once served as a board member. Jo introduced Annie to Julie Neumann, MA/OTR/L, Director of Outpatient Services at A Chance To Grow, and together they discussed Oliver’s symptoms, health history and current predicament. “We discussed several options including modifying his school day, moving to a different first grade classroom, or returning to his former kindergarten class. They recommended Oliver regress back to kindergarten because he wasn’t developmentally a first grader yet,” said Annie. They explained that Oliver’s wild behavior was caused by a sensory processing disorder, meaning his brain was having trouble receiving and responding to information coming through his senses; specifically his proprioceptive system. His body’s way of seeking sensory input from his environment was causing his behavioral outbursts - he was unaware where his body was in space. “They told me about MNRI and how integrating his reflexes could build a foundation to overcome his emotional and physical delays, but it would take time,” said Annie. Time wasn’t on their side. Almost simultaneously, Annie and her husband met with Oliver’s teachers and school officials to discuss their options moving forward. They proposed the regression to kindergarten and were hopeful when his former teacher agreed, and the administrators and counselors gave their consent. The administration asked Annie to keep Oliver at home for a few days while they discussed the details of the transition. It appeared as though everything would work out, until his kindergarten teacher changed her mind because she felt that Oliver was too smart for kindergarten. She was also concerned about the social-emotional impact that regression could have on Oliver and his peers. What followed were three difficult weeks in which Annie and her husband fought to keep Oliver in school. “It was a fiasco,” she said, fighting back tears. “He was out of school the whole time and his self-esteem was so low. He thought he was naughty. He was afraid he wouldn’t get to learn subtraction. It just broke my heart.” Oliver was too smart for kindergarten but not physically or emotionally ready for first grade. What could she do? She did what was best for Oliver - she pulled him out of school and quit her job. She didn’t know what school he’d be at or what grade he’d be in, but she knew she had found A Chance To Grow -- a place that understood what Oliver needed to get better. “The staff said, it didn’t matter where Oliver was at developmentally, they would work with him,” said Annie. Shortly thereafter, she enrolled Oliver back into kindergarten at a new school, left his old therapists and began coming A Chance To Grow twice weekly. “They were so willing to meet Oliver where he was developmentally and knowledgeable about what he needed to move forward.” Oliver’s OT, Alyssa, addressed his basic reflexes at first, but quickly noticed he could also benefit from speech therapy to improve his social language skills. “She referred us to Carly, who saw what I saw during the evaluation - poor articulation, no eye contact,” said Annie. “Oliver knew he wanted to sound better, so we immediately began speech therapy to help him better communicate his needs at home and in school.” Carly works on what triggers his meltdowns, practicing expected behaviors in a safe environment by building and scaffolding his social skills. “He used to be scared to lose and it would trigger a meltdown, but he’s learning how to handle that frustration and manage those social situations,” said Annie. During Oliver’s sessions, Alyssa demonstrates techniques for Annie so she can work with him at home. They work for 30 minutes almost every night on his grounding reflex, helping him to feel more stable, both physically and emotionally. “Once he knew where his body was in space, he stopped falling down,” she said. “There were a few days when we didn’t do the activities and he became restless and couldn’t sleep. He asked me to do some body work and in no time he was back in bed.” Throughout the first six months at A Chance To Grow, Annie witnessed many breakthrough moments that proved they were in the right place. “Our little dog Maggie used to be terrified of Oliver, but now she comes up to him and he’s able to hold her. It’s just amazing. You can’t be skeptical when you see progress like that.” Annie says that one of the best parts is that everything he needs is under one roof. “Everyone is working together to help Oliver, sharing information on all aspects of his treatment plan. It’s just such a different approach from the other places we’ve been. It’s become a safe space for all of us.” Annie has also attends A Chance To Grow workshops, including S.M.A.R.T. training, to further her own understanding of what Oliver is going through and how she can help him continue making progress. As for school, Oliver completed kindergarten and moved into first grade this past year. At a recent parent-teacher conference, Annie asked about his meltdowns and the teacher had no idea what she was referring to. The teacher thought Annie was talking about a different student! These days, Oliver is able to do many activities he couldn’t do even a year ago, like riding a scooter without falling, throwing and catching a ball, and hanging on monkey bars - not because he’s practiced these activities, but because they’ve built the foundations to be able to advance his balance and motor skills. “It’s been a really long journey, but he’s the best he’s ever been,” said Annie, “It’s been absolutely life-changing.” It can be hard for parents or educators to fully understand the difference between the developmental age of a child and his or her actual age. We have expectations of how children should behave at certain ages, and when these expectations aren’t met, adults can often respond to the situation with the child’s actual age in mind, discounting where the child is developmentally. The right therapist and approach can make all the difference when it comes to helping children reach their full potential. “If you want to learn how you as a parent can help, then this is the place. The wealth of knowledge and resources they provide are amazing. We love being here and we’re all much happier.” |
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